My Diagnosis Journey

I am so thankful to have answers for my lifelong chronic illness and disability. My Ehlers Danlos diagnosis changed my life…and made all the pieces make sense. For the longest time, I felt like there was something wrong with me, something I needed to hide. I felt like I was running a marathon trying to keep up with everyone else, and I didn’t know why.

Having a diagnosis is not only validating, it is illuminating. When you know you have a genetic condition that affects every system of the body, suddenly it is easier to connect the dots. The path to treatment and healing is clearer, and with the right medical team, is easier to tread.