Misconceptions I Have Heard about EDS
There are plenty of misconceptions about Ehlers Danlos Syndrome, a genetic connective tissue disorder that creates faulty collagen, causing dysfunction of most systems of the body. Because our bodies function differently than non-EDS bodies, we are very misunderstood, not only by strangers and sometimes loved ones, but most notably by the medical community. Below is a list of misconceptions that I have heard as a person with EDS.
My Diagnosis Journey
I am so thankful to have answers for my lifelong chronic illness and disability. My Ehlers Danlos diagnosis changed my life…and made all the pieces make sense. For the longest time, I felt like there was something wrong with me, something I needed to hide. I felt like I was running a marathon trying to keep up with everyone else, and I didn’t know why.
Having a diagnosis is not only validating, it is illuminating. When you know you have a genetic condition that affects every system of the body, suddenly it is easier to connect the dots. The path to treatment and healing is clearer, and with the right medical team, is easier to tread.